Repeat Pattern
It's been almost a week since my last update. Although part of last week my dad's mood was pretty bad, but after my multiple complaints, the docs finally d/c Klonopin and since Wednesday he was back to normal.
Therapy has gotten a bit more aggressive over the last week. Speech therapist 3 times a day to help him with meals. Physical therapy helping him stretch out his muscles and practice moving his legs. And occupational therapy happening during the week to help him dress and sometimes help him try to stand. All these sessions require a lot of his attention which he's having a bit of a problem with, but overall with the help of my brother he is mostly cooperating.
When I left him on Saturday, he was exhausted and pretty emotional, but that shows me that he is thinking and feeling and the exhaustion helped him get a good night's sleep. Not exactly sure what happened internally overnight, but yesterday his blood pressure started to climb up again. It went as high as 180/100. It went down after an extra does of meds and a large BM, but in the morning it went up a bit again.
This afternoon, same as what happened almost 1 month ago on 10/13, he started getting a fever. I just got off the phone with my brother and it went as high as 103.9 degrees about an hour ago. Although his BP is fine, he's extremely agitated and it was really difficult for the nurses to get a complete set of blood cultures from him. Right now he down at radiology to get yet another chest x-ray. I am counting the days since he officially started eating 3 meals a day on top of having the g-tube and it's about the same number of days since he started eating a month ago that he also had a fever attack.
Last time they weren't sure if it was a lung infection from silent aspirating or a UTI, but I have a feeling it is the former and it's due to eating. A complete drawback but let's hope that the past 3 weeks of recovery has strengthened his internal system so he can fight this one off naturally in a shorter amount of time. It is flue/cold season....... right.. as I am getting sick myself.
Although test results will have to wait until tomorrow, I hope my dad can at least get an uninterrupted night's sleep. Now that the temperature is back down to 99 after a ton of ice packs, hopefully it doesn't climb up again. Please help us think of good thoughts.
Lastly, thanks to Mabel Ko and Chen-pin Hu to your donation. Night.
Therapy has gotten a bit more aggressive over the last week. Speech therapist 3 times a day to help him with meals. Physical therapy helping him stretch out his muscles and practice moving his legs. And occupational therapy happening during the week to help him dress and sometimes help him try to stand. All these sessions require a lot of his attention which he's having a bit of a problem with, but overall with the help of my brother he is mostly cooperating.
When I left him on Saturday, he was exhausted and pretty emotional, but that shows me that he is thinking and feeling and the exhaustion helped him get a good night's sleep. Not exactly sure what happened internally overnight, but yesterday his blood pressure started to climb up again. It went as high as 180/100. It went down after an extra does of meds and a large BM, but in the morning it went up a bit again.
This afternoon, same as what happened almost 1 month ago on 10/13, he started getting a fever. I just got off the phone with my brother and it went as high as 103.9 degrees about an hour ago. Although his BP is fine, he's extremely agitated and it was really difficult for the nurses to get a complete set of blood cultures from him. Right now he down at radiology to get yet another chest x-ray. I am counting the days since he officially started eating 3 meals a day on top of having the g-tube and it's about the same number of days since he started eating a month ago that he also had a fever attack.
Last time they weren't sure if it was a lung infection from silent aspirating or a UTI, but I have a feeling it is the former and it's due to eating. A complete drawback but let's hope that the past 3 weeks of recovery has strengthened his internal system so he can fight this one off naturally in a shorter amount of time. It is flue/cold season....... right.. as I am getting sick myself.
Although test results will have to wait until tomorrow, I hope my dad can at least get an uninterrupted night's sleep. Now that the temperature is back down to 99 after a ton of ice packs, hopefully it doesn't climb up again. Please help us think of good thoughts.
Lastly, thanks to Mabel Ko and Chen-pin Hu to your donation. Night.

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